Art Bras For Breast Cancer!!!!!!!!!

So, folks, don't do hypnotherapy that is devised to make you feel fresh and alert at midnight. It just makes you feel fresh and alert....at midnight. lol!

However, I will take this opportunity to post a few of my favorite pics from the ArtBra Auction. Many of you have asked did they all sell? How much was raised? I am not sure right now, people are being notified and checks are being mailed, etc. I think we will know soon.



What I do know. People rock. Most people rock. Many people who came, I didn't know personally! many people who donated bras, I didn't know personally. PEOPLE CARE. We just need to start talking to each other again, and we can find that out very easily. That is a unexpected blessing of this journey. I get to find this out.



For your viewing pleasure....a small sample of the 40 bras donated for the auction!!!!!!







the birds nests













ANYONE can join in on the fun...and the guys really did enjoy modeling a few pieces!













pinwheels for those cool breezes!

for those who need some
holiday countdown help?










Miss Direction took us to the Northwest with a FireFaery friend.
















Jennifer Seaman did stand up comedy!










And the lady of the night, Kendyl, who spearheaded this amazing night!!!!!

There were many, many more! But for now, that is a taste of the action!







Night!
Jenna
(self appointed goddess of healing empowerment)

Zometa Dancing

So, friends, just a quick note. I am dancing with Zometa this week. Yesterday was weird. Not nearly as bad as the first Zometa round, that felt akin to torture. But it did get my brain all muddled and fuzzy and it felt like gravity grew stronger. So I slept and woke up and slept some more. Today is better, but I feel like my writing will wandering around, like a cat lost in the woods trying to find it's way home.

I will write soon and share some Art Bra Auction pictures and celebrate healing.

For today...quick gratitude list - in no particular order, and by no means complete:

1- Miss Direction
2- Ruby Q
3- Kendylicious
4- Genevegan and her man
5- the Lady on Bus #5
6- lemon/ginger tea
7- pumpkin patches
8- NPR
9- split pea soup
10- jigaw puzzles for a muddled mind

Chemo Crash Post Followup

So, awhile back, I added a dashboard to this blog that would allow me to see what kind of traffic was coming through this site. I did it to make sure I wasn't writing to the abyss. hehehehe. It tells me all kinds of good information (BUT IT DOES NOT TELL ME WHO IS COMING, ONLY THE CITY FROM WHICH I GET HITS). I did find out that the number one google search that brings people to this site (and the number 1 on the google list) is the post below. Since I know this now, I have added, to the original post, follow up information. I thought I repost that entry here, so that everyone could see the follow up.

If you have read the original post, please take the time to read the additional information in italics. That is my blog entry for the day. It has important information I want to get out there.
Read on....italics below....

Namaste
Jenna
-----------------------------------------------------------------------

Thursday, June 26, 2008

Post Chemo Crash Day 2

So, after talking to my oncologist, Taxol can hit 36 hours after the administration and take about 24 hours to pass/peak. That peak hit yesterday afternoon around 4:00. Dear God. But it was good to know it would pass that peak point and not stay there forever.

Today, joints hurt I didn't even know I had! Someone please get the license plate number of the truck that hit me?

While I feel, I think, the worst I have ever felt in my life, it is indeed passing. Wew. It helps to Zen into it and pray. It is the only way at some points.

And this is the "easy" stuff. I have so much empathy for the harder hitting chemo drugs and the people who take them. They deserve a badge of courage.

The worst for this week is over. Now recoup. And learn. Learn how to rest, eat, and do the dance around the chemo days to make the post days go easier. My oncologist said that is the way it goes. You experience it, then adapt. Much like life.

So for today, my super-chemo-ninja-badge looks something like this:





---------------------------
The following info was added Oct. 14th as a FOLLOW UP. I see from my dashboard to this site, that the number one referral from goggle to this blog is if people search for "Chemo Crash." I top this the list. So I would like to add the following information - in case you don't read beyond this one entry.

It turns out that I had an allergic reaction to Taxol. (see here for that entry) Which explains why it was such a hard crash afterwards. I know a dear friend of mine, on Taxol, who had VERY little issues with Taxol. So please, one of the most important things to know with chemo - is that EVERYBODY REACTS DIFFERENTLY. If you are having a nasty ride, I would HIGHLY recommend two things:

1) Finding a good acupunsturist who works with chemo patients. This alone will control side effects. I have seen this again and again. Anyone I know who lived FAR beyond their life expectancy did two things, found peace everyday, and did acupuncture. I had more people refer me to acupuncturists "their other friend who survived cancer", than any other CAM medicine.

2) Try hypnotherapy. I have a personal hypnotherapist, and I have a CD (see sidebar). Within hypnotherapy, we have created a control board, that allows me to create dials as needed. Pain? I create a nob and turn the number from 8 to 7, to 6, to 5 etc. White blood cells dropping? I create a nob, and turn it from 4.0 to 6.5. Just a quick note, my white blood cells have NEVER dropped below 4.1!!! And usually average 6.0 with peaks in the 7's!!!!!!!!!

If you are about to embark on your journey with Taxol, please do not EXPECT this horrible side effect reaction. It is highly unlikely. It was probably the allergy to the base the put Taxol in that did the harm. (see that blog entry here) But, again, please look into Alternative Therapies to help control side effects!!! My reaction was an allergy to the base they put Taxol drugs in to administer them.

This leads me to one last note on Taxol. I ended up switching from Taxol to Arbraxane. Abraxane has the same drugs in it as Taxol, but the base they put it in is different. It is some sort of human protein or something, so it is not foreign to the human body and has very little side effects. HOWEVER, the cost....went from around $30,000 on Taxol, to $50,000 for the Abraxane. EACH AND EVERY TIME I GET IT. NOT OVERALL!!!!! EACH DOSE!!!!!! This point always stuns people. I think I see their minds go >boom!<. Yes, each dose costs $50,000. Now, for all of you freaking out, Insurance give In network a huge discount, and we only pay %10 after that til we hit our overall cap. Until our cap is reached, it costs up $1,600 EACH DOSE. Now, it is hard to read the insurance forms and bills, but I believe that is just for Abraxane and not including the premeds I get each time. But I am not sure.

But you should know, it takes a serious life threatening reaction to get put on Abraxane because of the expense. So, "regular" side effects won't get the switch. I am sorry if you are having a rougher ride, but don't expect to pay for the Abraxane out of pocket.
--------------------------------------------------
Okay, off to rest.

HUGS
Jenna

Do You Know How Amazing You Are

Do you all know how amazing you all are? How beautiful people can be? In the midst of this "financial crisis", people are still generous, with their love, hope, creativity, money, time, etc.

I just returned from the Art Bra Auction, the brainchild of my friend Kendyl and with the help of many. Do you know, complete strangers donated AMAZING works of art. Dear friends and their families did so as well. I am just so amazed...at the creativity I saw, and the generosity, and the goodwill.

I have to detach a bit. To know this, in the end, was to harness healing energy, and monetary support, for little ole me...well, that much good energy is can humble you. To enjoy it, I had to not let myself really let it sink in it was for me (us - my family).

For those who missed, NO GUILT, but oh, you missed a good time. I will put pictures up. And the overwhelming donation of bras...there are still some to be taken home. There were wool ones, knitted ones, copper ones, ceramic ones, belly dancing ones, ones with toy soldiers, camouflage and pink ribbons, hand embroidered NW ones, flower ones, etc etc. Woah.

Thank you, thank you, thank you. I met some new faces, that brought me happiness. Some old friends I haven't seen in awhile came....

it is all so good.

And just so people know. Our medical bills situation is working out slowly. We still have more than we can pay, but with the fundraisers, people pointing me in the direction of places that help, etc, we are wading our way through. With my health improving, it looks like work will be in my future, and that will reallllllllllly help.

I do plan to put up songs that a friend of mine recorded (and a few I recorded on my own) to offer in turn for a donation through this blog. THAT will be my gift back to you. All the songs will be either spiritual chants I have learned, or songs/lullabies I wrote for my daughter. We are working on the technical aspects of getting the posted to download with each donation.

Again..............woah.........sooooooo amazing (huge smile)

Love right back to all of you who came tonight,
Jenna

Peaceful Yummy Purrrrrrr

I am just reveling in the warmth of healing. Like a cat, in a patch of sunlight. So I feel quiet.

Had a great chat with a friend over tea yesterday. Peaceful.

Had a early morning walk with Bug today, collecting leaves, catching up. Sun was out. Purrr. And NO pain, WE WALKED together. Precious, cherished time.

Chemo has tired me, and the last two days I danced with its side effects, but still, Peace.

Yummmmmmy precious peace.

Next week is a Zometa week. So anyone wanting to be "on standby" let me know. hopefully, third time is the charm. I know the CraftyDabbler is out there. Would you like to have a day of knitting and tea? Maybe introduce me to spinning?

I hope you all have a least one moment in this hectic transitional time of pure, purrrrrring Peace.
Jenna

From holding my breath...to Wew!

So, everyone who has called, and not gotten back an answer for a week. I apologize. Had some stomach issues earlier in the week, and then, I had the PET/CT to check on what was going on inside (see last post). I have been quiet. Wound up like a ball of yarn and holding my breath. I realized Sunday and had subtly closed myself off from the world and was just ....waiting.... would this be some shrunk, and some grew? Was that NEW pain a NEW tumor....was the back pain because it is was growing...or because I have been USING it more because they are GONE?

Good news! First Pet scans/CT are back, and it looks
realllllllllllllllllllly good! The doc started off with a huge smile
and said "These scans looks amazing!" and went on to say that in ALL
area, there has been (in the words of the scan doc who wrote the
report) "dramatic decrease in size" of all the sites! No bones tumors,
lymphs nodes to "scarce traces in a couple", the breast ones are only
very small traces, and the liver has dropped dramatically (one went
from 28 mm to 11) with ALL showing significant decreases. The spleen
is not looking like a cancercous tumor, but a benign one. In light of
all the others "dramatic" decrease, and not change or metabolic
activity, this small 2mm site appears benign. WEW!!!!!!!!!!!!!

That means at at least 3 months more chemo to keep pushing them down
into a remission state that is as small as possible. If things keep
going so well, she is open to not going on with chemo but changing
over to a hormonal therapy & Herceptin. I expressed the desire not to
beat my body down and keep it as strong as possible and use hormones
and Herceptin and natural therapies. WEW.

Is that the light at the end of tunnel!

Still will be doing chemo every week for another three months. So the
hard part isn't over yet, but at least we know is it ROCKING, and
telling these cancer cells they don't belong here. It is amazing. Even
the ones in the liver that are there are so no metabolic activity!

Can you say, I am a happy happy girl!

Even the stoic doc, was all smiles and.... HUGGED ME!!!!!!!!!!!

Wew,

Darn, that time and its wings!

Sorry everyone, I didn't realize that I had let the time fly this week. Yes, the PET/CT scan was done on Thursday. I was nice and radioactive once again. I don't have test results back yet. That is okay, I want a chance to check in with my body and see what it says.

I did some BIG work today with my acupuncturist/ND. I won't go into details. Even for me, it is too private to share. But I will say a LOT of energy moved out of my lungs and I could feel the air move through my left lung again. Now, I before you go a freakin' out....I had this feeling BEFORE, and the scan were clear. I have to reassure myself of this.

So when I listen, my spleen is inflamed, my liver to a lesser degree is inflamed, my left hip bones, where you sit, ouch, and the vertbra between my shoulders has become so painful, I plan to talk about solutions.

It is out of the breasts as far as not being able to feel any tumors. Strangely enough, there is a hallow where the big one once was. Weird. Maybe lingering in a lymph node. But I feel very clear. My liver and spleen are unhappy, but I don't think that means worse off, just handling it all and having a time of it.

The "official" opinion comes on Monday and I will let you all know what transpires.

For now, I have to put my dear one to bed.

Love to you all!
Jenna